Living with ME

4th July 2018 was the day I lost my independence. Oh, the irony. Of course, independence is a fickle thing, it is as much a mind battle as it is a physical challenge.

As much as I’d be willing to fight to say that my independence was never lost or found, it is a central struggle of my new existence with a diagnosis of ME (My-al-gic En-ceph-a-lo-my-e-li-tis). Also known as Myalgic Encephalopathy and Chronic Fatigue Syndrome.

You can join me on this journey towards greater/found/re-discovered independence with a chronic illness. Notice how I’m keeping this notion as a progressive stance, not looking, or perhaps falling, backwards. But we probably both know, there’s hope, faith, reality, and there’s being disillusioned. Whatever happens, you’ll have read about it here first.


Writing about ME

Illustrating ME


Nutrition Support I make use of


External links for ME sites