Living with ME

Illustrating ME

4th July 2018 was the day I lost my independence. Oh, the irony. Of course, independence is a fickle thing, it is as much a mind battle as it is a physical challenge.

As much as I’d be willing to fight to say that my independence was never lost or found, it is a central struggle of my new existence with a diagnosis of ME (My-al-gic–En-ceph-a-lo-my-e-li-tis). Also known as Myalgic Encephalopathy (I’ve never used this) and Chronic Fatigue Syndrome (least preferred).

You can join me on this journey towards greater/found/re-discovered independence with a chronic illness. Notice how I’m keeping this notion as a progressive stance, not looking, or perhaps falling, backwards. But we probably both know, there’s hope, faith, reality, and there’s being disillusioned. Whatever happens, you’ll have read about it here first.

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External site resources

Discover more about ME

ME Action

Includes #MEActionUK & #MEActionScotland. Visit ME Action for more info


ME Action network encyclopedia. Visit MEpedia for more information.

ME Research UK

ME Research UK charity. Visit ME Research UK site for more information.

Decode ME

World’s largest research study into cause of ME. Visit the Decode ME website for more information.